We heard that the side effects of steroid use was increased appetite, mood swings, and moon face among other things. Hailey has been on steroids for so long that I forgot how skinny she used to be. These pictures are just 1 year apart. It doesn't look like the same little girl. Steroids have sure taken a toll on her little body. But her smile is the EXACT same!
Our daughter Hailey was diagnosed with Leukodystrophy in 2011, a terminal brain disease. There is no cure or treatment. In January of 2015 she had a Pacemaker placed. There are medical bills, prescriptions not covered by insurance, Dr. Appointments out of state, and surprise expenses that would take a toll on any family. One way to share our story is to share jewelry we created together. There are many places we want to take her. Each necklace signifies a Hug for Hailey.
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