September is Leukodystrophy awareness month! We have decided to open our booster back up for anyone who would like to purchase a Hugs for Hailey t-shirt! These are the American Apparel super soft shirts! We also have NEW fun colors! You'll even get your shirt in time to wear it for the month of September!
Check them out HERE!!
Our daughter Hailey was diagnosed with Leukodystrophy in 2011, a terminal brain disease. There is no cure or treatment. In January of 2015 she had a Pacemaker placed. There are medical bills, prescriptions not covered by insurance, Dr. Appointments out of state, and surprise expenses that would take a toll on any family. One way to share our story is to share jewelry we created together. There are many places we want to take her. Each necklace signifies a Hug for Hailey.