Sunday, January 21, 2018

Happy 3 year Pacemaker Anniversary

Today marks 3 years since Hailey's Pacemaker surgery. I won't re-write everything I have already talked about. If you would like to read the blog post of that time you can do so here:

Hailey's MRI and Pacemaker Surgery Story

So far living with the pacemaker has greatly improved Hailey's quality of life. We have tried to be a part of this "children with Heart issues" society and we've done a lot with them. We've been a part of family picnics and this year we will be walking the family 1 mile walk to raise money for Children with heart issues. We've even met another little girl who has just recently has a pacemaker placed.

We've had TONS of doctor appointments associated with having a pacemaker. It has not been a set it and forget it type of device. Hailey's pacemaker paces 99% of the time. We all greatly depend on this tiny device. We used to have a machine that send data over phone lines, now we have one that does it over bluetooth and my cell phone. Technology is always improving.

We still travel to Utah for Hailey's cardiology appointments but we did have to establish a "home" cardiologist as well. We always want to be prepared.

Hailey will be taking treats to school to share with the kids as we celebrate her pacemakers birthday.

Time sure does fly by...

Saturday, January 20, 2018

Etsy Store ReStock

Our Etsy shop is re-stocked with LOTS of fun items!! We have dessert platters, Las Vegas Ribbons, more decals, bucket decals for Halloween, Valentines and Easter, even princess laptop decals!

We also do lots of custom orders too. Let me know if you have something in mind. We can do any logo and we've even done some custom shirts! 

Check everything out while everything is in STOCK! 

Saturday, September 30, 2017

Custom Ornaments are listed in our Etsy Shop

We now have our custom ornaments listed in our Etsy shop! I have designed some to give you ideas, but feel free to message me about creating your own! Pick your glitter color and pick your Vinyl color!! 

These custom ornaments are perfect for:
*teachers gifts
*newly married couples
*animal lovers

We also have car decals, custom Halloween Buckets, and greeting cards available for purchase!

The holidays are coming up and we want to raise as much money as we can to make sure Hailey has the best Holidays possible! We enjoy working on these things together!! 

We can also do custom shirts! Just message me your ideas and we can bring them to a shirt!

Sunday, September 24, 2017

Check out our Etsy Shop!!

Tsum Tsum vinyl decals are now listed in our shop!! Just $2 each includes shipping!! Lots to choose from or if there is one you want but don't see let me know. These can be stuck on Car windows, laptops, cell phone cases, etc... Help support our shop and fun family activities for Hailey! We want to sell enough to go to the movies (Hailey can't wait for Coco) or Dave and Busters, or a trip to the pumpkin festival! Everything goes to Hailey! 

Monday, September 11, 2017

Hugs for Hailey Ornaments are Coming Soon!!!

We had a lot of fun decorating our own Hugs for Hailey ornaments and when I asked Hailey what other ornaments she wanted for our tree the ones she picked were all Disney related. Go figure, my Disney girl! 

It's not too early to start thinking about Christmas is it? 

We will be posting our Hugs for Hailey ornaments in our Etsy shop probably starting in October. Be sure to keep an eye out. If you have any ideas you'd be interested in purchasing from us please let us know. Custom orders are a lot of fun! 

Here are some of the ideas Hailey and I came up with for our tree! 
 Monogram Disney Castle Ornament. 

 One of our favorite characters is Jack Skellington! 

I love this idea of a Santa Cam to make sure that Hailey stays on the nice list! Santa is watching!  

Who doesn't want the Mouse himself on the tree!? 

Wednesday, August 23, 2017

In June Hailey went to Summer Camp

Hailey being able to go to summer camp isn't something that we thought that Hailey would be able to participate in. There is a camp just for children with heart conditions here where we live and Hailey was able to go! Hailey is too medically fragile to be able to attend by herself independently so we decided to all go for the day as a family. It was so much fun and we all loved every minute!

Here are some highlights of what we did at Camp Mend a Heart!

 Hailey was able to do the rock climbing wall with some help from her dad. Good thing he is tall and could help her go pretty high. She loved it! 

If you know Hailey you know she LOVES arts and crafts! The kids made rain sticks and collected autographs. We even found another little girl that was going to be getting a pacemaker the week after. Hailey quickly made lots of friends. 

Archery was next on our activity list and even though this was an extremely difficult task, Hailey still tried her best and had so much fun! 

They had a private lake where all the kids were able to test out their skills at using a canoe. Hailey could have stayed out on the water for hours. 

We let her stay out as long as the sun was hidden by cloud cover. It was about 20 degrees cooler at camp, but when it's 120* in Las Vegas 20 degrees less is still HOT! 

The scenery was incredible! The camp was very prepared and while Hailey was there she was able to use the golf carts to get to the different activities and we even had to visit the nurses tent to cool off with a popsicle and gatorade for a bit. 

It was such a treat for us to be able to have Hailey experience this. 

So many fun activities for the kids! 

This opportunity was given to these children free of charge through fundraising and donations. Thank you to Camp Mend a Heart for inviting Hailey to camp! 

Tuesday, July 11, 2017

We are selling shirts!!! But hurry, you only have 4 days!

For the next 4 days we will be selling Hugs for Hailey Shirts!!! YAY!! We are doing it TOTALLY different this time! You just need to click the order form below and fill it out. Then just leave me a comment letting me know you placed an order. I will be sending invoices via PayPal where you can pay with a credit/debit card. We are hoping to collect orders Tuesday July 11th - Friday July 14th. Print orders on Saturday, Pack orders Sunday and ship on Monday! This is a quick turn around! Our GOAL is to sell 50 shirts in 4 days!! We have shirts and totes all for sale at $10 each!!!
The shipping info is as follows. $5 for 1 shirt $10 for 2 shirts $20 for 3-10 shirts (shipped in a flat rate box. Great for group orders) If you are attending Hunters Hope I can bring your shirt(s) to you for FREE!

*First person to place an order will also get 2 Hugs for Hailey bracelets included in their order!*


Let me know if you have any questions! Thank you!!