Hailey had a great weekend! I don’t know who invented trunk or treating but they deserve a high five from every mom that has a medically fragile, disabled, or special needs child. On Halloween Hailey can not go up to houses and ring the bell like a typical child. Nearly every house (in our neighborhood especially) have steps and Hailey is either using her walker or her wheelchair. It’s not easy. Also there aren’t too many events for kids like Hailey. She can’t handle strobing or flashing lights, she can’t climb up big bouncy slides, and maneuvering through chaos and crowds is very uncomfortable.
We’re so thankful that Hailey has friends in the community that sees this and invites her to be a part of their fun. Thank you to Ronald McDonald House Las Vegas and the RED Shoe Society for letting Hailey join your trunk or treat. She loved decorating our car and passing out HANDFULS of candy and then going around in her walker as well. It was a fun night for us as a family and we really appreciate it!
Thank you to Ferell, Julie, Ashley, Buffy and everyone else who put together and participated in such a great event. ❤️ 👻 🎃 🍭
Our daughter Hailey was diagnosed with Leukodystrophy in 2011, a terminal brain disease. There is no cure or treatment. In January of 2015 she had a Pacemaker placed. There are medical bills, prescriptions not covered by insurance, Dr. Appointments out of state, and surprise expenses that would take a toll on any family. One way to share our story is to share jewelry we created together. There are many places we want to take her. Each necklace signifies a Hug for Hailey.
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