Yesterday was such a fun night for our family! I signed Hailey up to participate in a ice hockey activity with the Paralympic organization! Her adaptive PE teacher invited us to attend knowing Hailey would enjoy it. She had SO much fun and even made a goal! It was great to see her be able to “ice skate” and be with other children of different abilities. I (mom) have never been in ice skates before had to learn pretty quick so I could take her on a few laps around the rink. Hailey was hesitant at first but when she saw other kids out there and waving and smiling she wanted to give it a try. We spent about an hour and a half on the ice with smiles the whole time. What a great organization!
Our daughter Hailey was diagnosed with Leukodystrophy in 2011, a terminal brain disease. There is no cure or treatment. In January of 2015 she had a Pacemaker placed. There are medical bills, prescriptions not covered by insurance, Dr. Appointments out of state, and surprise expenses that would take a toll on any family. One way to share our story is to share jewelry we created together. There are many places we want to take her. Each necklace signifies a Hug for Hailey.
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