Our daughter Hailey was diagnosed with Leukodystrophy in 2011, a terminal brain disease. There is no cure or treatment. In January of 2015 she had a Pacemaker placed. There are medical bills, prescriptions not covered by insurance, Dr. Appointments out of state, and surprise expenses that would take a toll on any family. One way to share our story is to share jewelry we created together. There are many places we want to take her. Each necklace signifies a Hug for Hailey.
Friday, September 21, 2018
We had an exciting weekend for Hailey! You know how much this kid loves watching the races! She’s a fan of RallyCar, NHRA, and Nascar. We were given tickets to Nascar weekend here in Las Vegas and it was great family time together! 🏎💨 Thanks goes out to Paula for donating her tickets to our family. It was a great event!
Post a Comment