I can’t tell you how many times I’ve walked into this hospital. I can’t tell you the number of nights I’ve spent trying to sleep in an uncomfortable hospital chair either in Hailey’s hospital room or the waiting room. How many hours I’ve spent waiting on updates from nurses about Hailey’s surgeries, MRIs, and procedures. How many times I have given my daughter to doctors who are really strangers and allow them to care for her during the times when she vulnerable or was unable to speak or care for herself. It’s unimaginable for some and it’s reality for so many. If we didn’t have this hospital available to us (even though it’s 400 miles away from home) I don’t know where we’d be today. The doctors here diagnosed Hailey with Leukodystrophy 6 years ago. They work as a team to try to understand and predict what Hailey’s future, our future, will be like. Primary Children's Hospital is almost like our second home, and even though I’d love a second home anywhere but there, this is our journey, and these are our memories. You have to try and remember the good and try to forget about the scary. As long as we need to we will continue to make this walk into this building as a family.
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