Once the phlebotomist arrives we all tense up. I ask why they can't just take blood through he IV? Once medicine is administered through an IV you can't draw blood from it. So we have to poke her. I asked the tech if she was really good at her job. I only want to have to poke her ONCE! After they prep Hailey they have all the vials lined up and gauze and tape ready they pull out the tourniquet. Hailey knows what's coming and she freaks out. You can't blame her can you? Well after a few moments with our breath held the tech pokes and hits the vein! Finally! Hailey is still screaming but the blood is flowing.
I remember watching those vials fill up and knowing how much information is stored in that blood. What was the test going to tell us? We'd have to wait 4-6 weeks to find out.
Josh's mom flies down from Washington and is at the hospital with us. We should be going home tomorrow after her last IVIG treatment. Our regular neurologist is back and comes to the hospital that night. The look on this guys face when he saw that we were back in the hospital was a look of dread. He knew this was something more then ADEM but he had told us this could be just a chronic case of ADEM. Hailey will be discharged tomorrow and put BACK on steroids. The highest dose I think he's ever prescribed. He also recommended that we see a geneticist. The problem with that, there is only ONE in the WHOLE state and her waiting list is a YEAR long! Even with a STAT referral it's been 9 months and I still don't have an appointment.
Hailey's granny sent her a gift that Josh's mom brought down. Hailey had a new friend. When you press the paw the dogs ears flap up and down really fast and she thinks this is pretty funny.