April Happenings. Oh my! What a month!!

 Time to talk about April even though I know we are in June. Read on and you will cut me some slack. It's been Crazy!!

The month of April didn't start off too bad. Hailey went to horse therapy and had been doing great! 

We were able to celebrate Easter and Hailey's Aunt got her this cool Easter shadow egg. Hailey would look inside every time she passed by the egg. It was so neat! 

 We did go to a few Easter Egg hunts but Hailey started to not feel to well. It was spring break and she just seemed like she wasn't feeling to well. No fever, but she just got worse and worse. 

She did start throwing up and not holding anything down so we ended up in the emergency room! She was ataxic and due to disease progression she was becoming lethargic and dehydrated. 

We discovered she also had strep throat and a bladder infection. She was given antibiotics and was doing fine until...

We discovered that she was allergic to her anti biotic! We did go to her pediatrician and we now have to add allergic to amoxicillin to her charts...

Everything cleared up pretty quick and Hailey was back to normal. Which was great because we always have fun things planned for her! 

She attended a dinner for the Make a Wish volunteers and she had a ton of fun. 

We were also invited to Bonnie Springs where they were raising money to be donated to Make a Wish. It was put together by another wish kid that is someone very close to Hailey. We had so much fun! 

There was so much to see! We loved the animals and the train rides! 

Then this happened....

Hailey's mom was diagnosed with Graves Disease or a Hyper Thyroid and needed to undergo radiation therapy. She was also going to be in restricted isolation for 3 days and then modified isolation for 2 days after that. Hailey's grandparents flew down and Hailey was able to face time with mom. It was pretty odd not being able to be with Hailey when that's all Hailey's mom did. She took care of Hailey 24/7. Being in isolation meant NO contact, No sharing bathrooms, beds, towels, linens. No touching food or plates or utensils. Throwing everything touched into a garbage bag and holding the garbage for 6 weeks. 

After isolation was over Hailey's mom developed thyroiditis and needed to be put on steroids. Then now that we are 7 weeks after radiation we receive our bill which is HUNDREDS and HUNDREDS of dollars. Hailey's mom set up a booster to try and help raise money to pay that bill. You can see the booster HERE if you are interested in helping. 

That was April. Now on to May...

Easter 2015

Hailey was on Spring Break last week and since we can't go far because of Therapy 3x's a week and a Doctors appointment we had a stay-cation at home just me and her. 

I had a few hands on activities planned, but secretly I hoped we could just sleep in late just 1 time...

Hailey loves to be a chef and this week we did lots of baking! Hailey thought that these cookies with a bunny in the middle were really neat and she could do it all on her own! 

We also planned to have Hailey's cousin over to dye some Easter eggs! 

I discovered that I have never personally hard boiled eggs before...? Every year I say I need to and Josh just did it. This year was my year! 

Dying eggs has always been a very fun activity for the girls. 

We also baked and decorated cupcakes. Hailey does NOT eat cupcakes but I always try to include her and treat her as a normal child. She had a lot of fun decorating but did not like the frosting getting on her fingers and had me promptly wipe it off. 

I also saw an idea on Pinterest where you take pretzels and candy melts along with M&M's and make flowers. I really thought it would have turned out like the photo I had seen. The person who originally posted the activity was not a 6 or 8 year old...what is it called....#PinterestFail

But they had fun doing it and separating the colors of the M&Ms and that's what mattered! 

We joined Hailey's dad at his work for an Easter Egg Hunt the Saturday before Easter and that was also a lot of fun! 3500 eggs gone in 60 seconds...

Hailey had so many great people send her fun packages for Easter. This fun stuff came all the way from New York! 

To top off Easter I had been in contact with an organization called E Bunny and they wanted to make sure Hailey got THE best Easter Basket. Boy did they deliver on that! 

Everything in Hailey's basket was PERFECT! We appreciate this gift so much and would like to say Thank you to E Bunny for getting in touch with us and giving Hailey such a wonderful basket!!