Our daughter Hailey was diagnosed with Leukodystrophy in 2011, a terminal brain disease. There is no cure or treatment. In January of 2015 she had a Pacemaker placed. There are medical bills, prescriptions not covered by insurance, Dr. Appointments out of state, and surprise expenses that would take a toll on any family. One way to share our story is to share jewelry we created together. There are many places we want to take her.
Each necklace signifies a Hug for Hailey.
Parents of typical children, of Special needs children, medically fragile children, and all others in between would do anything for their kids. Before you eat you make sure your child had enough food, school needs are met by all those who interact with your child. You put blind faith into doctors, teachers, aides, therapists, even friends and family that they will treat your child as you would. Putting them first.
Letting Hailey grow up means I’m letting go of a piece of my heart. My heart beats for Hailey 24/7 so for this years shirt that is the design I chose. You can literally see my heartbeat for Hailey.
We now have our new Hugs for Hailey Heartbeat shirts available!! This is our biggest fundraising item! With Hailey’s birthday, and summer coming up we try to raise as much money as we can to be able to do fun things with Hailey! Some of our goals include taking Hailey to disneyland and to Buffalo for a Leukodystrophy family symposium! Just those two trips alone cost more then we can afford. We also have Hats available as well!! We always appreciate the support and if you don’t want a shirt but want to donate you can visit our blog and donate directly there.
We have lots of colors of shirts to pick from! Shop over at our Etsy store!
Red shirt w/yellow Royal blue w/white Heather green w/cream Heather orange w/cream Robin Egg w/orange Black w/gold Pink w/purple Yellow w/black White w/red Purple w/silver Heather grey w/light blue
Sizes are 2T-4T Youth Small-Youth Large Unisex Small - XLarge
If you are interested in bigger sizes or in tank tops we can do those too but that would be a custom order since those aren’t readily available and additional costs would be applied. Just message me!